First psoriasis registry to be set up in USA

Many months of efforts on behalf of the National Psoriasis Foundation and its 58,000 advocates has resulted in the grant of $1.5 million by Congress for the first-ever psoriasis patient registry at the Centers for Disease Control (CDC).

By aggregating data from the profiles of thousands of people with psoriatic disease, the patient registry will provide much-needed insight into how psoriasis and psoriatic arthritis impact those affected. Patient registries for other chronic diseases have been credited with improving treatment by as much as 50% through helping researchers and clinicians discover critical patterns in treatments and outcomes.

Psoriasis is the most prevalent autoimmune condition in the USA, affecting as many as 7.5 million Americans. Up to 30% of people with psoriasis will also develop psoriatic arthritis.

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First published January 2010

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